Our life with a rare genetic disease

Our new "toy" was born :-). Just few days ago I made to T one scooter board for: making her arms and core stronger providing vestibular, sensory and visual input improving bilateral coordination motor planning

Few days ago I built an indoor "playground" for T. From that time she climbs up the stairs and slides down the slide whenever she has a possibility. Helps her muscles, coordination, balance....esp these days, as the weather outside is not really friendly. Moreover it is very space saving, as it includes the loft bed also. T wished to sleep "up" for some time already, as she is 4 yrs old, I was a bit suspicious, but seems the whole complex works just perfect! Attaching some blackboard for drawing/writing is in mind ...